I was rocking it – thinking I had grief completely under wraps when it crashed down on me a few weeks ago. It happened when I learned that I had been shut out of a clinical trial for a new optogenetics drug I was convinced would give me back my eyesight. Somewhere in the recesses […]
2019 was stressful and serious for me. So my daughter, Hannah, and I decided to make the new decade all about fun – starting with a daily dance party. Hope you’ll join us!
Continue Reading...This vision loss thing has knocked me down hard plenty of times over the past year. And I know I’m not alone when it comes to the pain of this and other knock-out blows that life occasionally delivers. The only real question is how to get back on our feet once we regain consciousness and […]
I never gave much thought to the word Disability until I was slapped with that label and told to expect widespread stigma and social isolation. That’s when I understood just how messed up these ingrained prejudices and assumptions are when it comes to people dealing with a challenge that has been shoved under the disabilities […]
I’ve started thinking of fear as a malaria-carrying mosquito in Africa. They are tiny and lethal and impossible to escape. And as far as I can tell, there are only three real ways to deal with them. We can freak out and launch a frantic attack on any mosquito we encounter — which is exhausting […]